Meeting of SHE CAN LEAD Campaign held at NDF Rehab center Nawabshah

  

NAWABSHAH (27th Marach 2018) Meeting of She can lead campaign held at NDF Rehab center Nawabshah under lead by Mr. Zulfiqar Ali Khaskheli, coordinator Bhaan Beli. Mr. Zahid Bhutto Assistant Commissioner ECP was chief guest. Mr. Rehmat Wassan and Mr. Zahid Lashari from ndf welcomed the guests and briefed about NDF Rehab Center services in Nawabshah and offered full possible support in the She can lead campaign in Nawabshah.gencies such as JICA, USAID and others.

Mr. Krishan Kumar from USAID visited NDF Rehab Center Nawabshah.

Mr. Krishan Kumar from USAID visited NDF Rehab Center Nawabshah. He encouraged NDF team for this initiatives.

Pakistan Down Syndrome Association PDSA observed World Down Syndrome day 2018 at PDSA Karachi

  

Pakistan Down Syndrome Association (PDSA) observed world down syndrome day 2018 at Pdsa Karachi. Mr. Shariq Ahmed Provincial Secretary Law and BBSHRRDB BBSYDP was chief guest. Mr. Abid Lashari CEO PDSA briefed about importance of the day and shared pdsa progress in Pakistan. Mr. Shariq Ahmed encouraged PDSA efforts to Down Syndrome and establishing rehab center. Nawabshah a unique milestone towards rehabilitation of children. He also congratulated to graduate Bbsydp trainees under BBSYDP phase – x for their training completion and self employment. The Secretary awarded certificates to 30 trained beauticians during the ceremony. Mr. Anwar Ali Siyal President Pakistan US Alumni Network Sukkur also joined the seminar as guest in honor, he said that Down Syndrome children seek special attention to be adjusted in the society. He also congratulated the trainees of PDSA center.

 

Article by Abid Lashari on World Down Syndrome Day 2018 (21st March)

WORLD DOWN SYNDROME DAY 2018
BY: Abid Lashari
Down syndrome is a genetic disorder caused when abnormal cell division results in an extra full or partial copy of
chromosome 21. This extra genetic material causes the developmental changes and physical features of Down syndrome. Down syndrome varies in severity among individuals, causing lifelong intellectual disability and developmental delays. It’s the most common genetic chromosomal disorder and cause of learning disabilities in children. It also commonly causes other medical abnormalities, including heart and gastrointestinal disorders.

Better understanding of Down syndrome and early interventions can greatly increase the quality of life for children and adults with this disorder and help them live fulfilling lives Symptoms Each person with Down syndrome is an individual — intellectual and developmental problems may be mild, moderate or severe. Some people are healthy while others have significant health problems such as serious heart defects. Children and adults with Down syndrome have distinct facial features. Though not all people with Down syndrome have the same features, some of the more common features include:

Flattened face
Small head
Short neck
Protruding tongue
Upward slanting eye lids (palpebral fissures)
Unusually shaped or small ears
Poor muscle tone
Broad, short hands with a single crease in the palm
Relatively short fingers and small hands and feet
Excessive flexibility
Tiny white spots on the colored part (iris) of the eye called Brushfield’s spots
Short height
Infants with Down syndrome may be average size, but typically they grow slowly and remain shorter than other children the same age.

Intellectual disabilities
Most children with Down syndrome have mild to moderate cognitive impairment. Language is delayed, and both short and long-term memory is affected.

When to see a doctor Children with Down syndrome usually are diagnosed before or at birth. However, if you have any questions regarding your pregnancy or your child’s growth and development, talk with your doctor.

Causes
Human cells normally contain 23 pairs of chromosomes. One chromosome in each pair comes from your father, the other from your mother.

Down syndrome results when abnormal cell division involving chromosome 21 occurs. These cell division abnormalities result in an extra partial or full chromosome 21. This extra genetic material is responsible for the characteristic features and developmental problems of Down syndrome. Any one of three genetic variations can cause Down syndrome:

Trisomy 21. About 95 percent of the time, Down syndrome is caused by trisomy 21 — the person has three copies of
chromosome 21, instead of the usual two copies, in all cells. This is caused by abnormal cell division during the
development of the sperm cell or the egg cell.
Mosaic Down syndrome. In this rare form of Down syndrome, a person has only some cells with an extra copy of chromosome 21. This mosaic of normal and abnormal cells is caused by abnormal cell division after fertilization.
Translocation Down syndrome. Down syndrome can also occur when a portion of chromosome 21 becomes attached (translocated) onto another chromosome, before or at conception. These children have the usual two copies of chromosome 21, but they also have additional genetic material from chromosome 21 attached to another chromosome.
There are no known behavioral or environmental factors that cause Down syndrome.

Is it inherited?
Most of the time, Down syndrome isn’t inherited. It’s caused by a mistake in cell division during early development of the fetus.

Translocation Down syndrome can be passed from parent to child. However, only about 3 to 4 percent of children with Down syndrome have translocation and only some of them inherited it from one of their parents.

When balanced translocations are inherited, the mother or father has some rearranged genetic material from chromosome 21 on another chromosome, but no extra genetic material. This means he or she has no signs or symptoms of Down syndrome, but can pass an unbalanced translocation on to children, causing Down syndrome in the children.

Risk factors
Some parents have a greater risk of having a baby with Down syndrome. Risk factors include:

Advancing maternal age. A woman’s chances of giving birth to a child with Down syndrome increase with age because older eggs have a greater risk of improper chromosome division. A woman’s risk of conceiving a child with Down syndrome increases after 35 years of age. However, most children with Down syndrome are born to women under age 35 because younger women have far more babies.
Being carriers of the genetic translocation for Down syndrome. Both men and women can pass the genetic translocation for Down syndrome on to their children.
Having had one child with Down syndrome. Parents who have one child with Down syndrome and parents who have a translocation themselves are at an increased risk of having another child with Down syndrome. A genetic counselor can help parents assess the risk of having a second child with Down syndrome.

Complications

People with Down syndrome can have a variety of complications, some of which become more prominent as they get older.
These complications can include:

Heart defects. About half the children with Down syndrome are born with some type of congenital heart defect. These heart problems can be life-threatening and may require surgery in early infancy.
Gastrointestinal (GI) defects. GI abnormalities occur in some children with Down syndrome and may include abnormalities of the intestines, esophagus, trachea and anus. The risk of developing digestive problems, such as GI blockage, heartburn (gastroesophageal reflux) or celiac disease, may be increased.
Immune disorders. Because of abnormalities in their immune systems, people with Down syndrome are at increased risk of developing autoimmune disorders, some forms of cancer, and infectious diseases, such as pneumonia.
Sleep apnea. Because of soft tissue and skeletal changes that lead to the obstruction of their airways, children and
adults with Down syndrome are at greater risk of obstructive sleep apnea.
Obesity. People with Down syndrome have a greater tendency to be obese compared with the general population.
Spinal problems. Some people with Down syndrome may have a misalignment of the top two vertebrae in the neck (atlantoaxial instability). This condition puts them at risk of serious injury to the spinal cord from overextension of the neck.
Leukemia. Young children with Down syndrome have an increased risk of leukemia.
Dementia. People with Down syndrome have a greatly increased risk of dementia — signs and symptoms may begin around age 50. Having Down syndrome also increases the risk of developing Alzheimer’s disease.
Other problems. Down syndrome may also be associated with other health conditions, including endocrine problems, dental problems, seizures, ear infections, and hearing and vision problems.
For people with Down syndrome, getting routine medical care and treating issues when needed can help with maintaining a healthy lifestyle.

Life expectancy
Life spans have increased dramatically for people with Down syndrome. Today, someone with Down syndrome can expect to live more than 60 years, depending on the severity of health problems.

Prevention
There’s no way to prevent Down syndrome. If you’re at high risk of having a child with Down syndrome or you already have one child with Down syndrome, you may want to consult a genetic counselor before becoming pregnant.

A genetic counselor can help you understand your chances of having a child with Down syndrome. He or she can also explain the prenatal tests that are available and help explain the pros and cons of testing.
Sources: Mayo Clinic

 

NDF participation during plantation drive on Forestry Day at Textile Institute of Pakistan

 

KARACHI: (20th March 2018) During plantation at Textile Institute of Pakistan, observing 21st March international forest day, activity conducted by Caritas, NDF and other organizations. 500 plants were planted in the institutes, the youth was enthusiastic to promote greenery.

 

Some visitors are seen visiting NDF CDP Rehab Center Nawabshah

  

NAWABSHAH (18th March 2018) Some visitors are seen visiting ndf Rehab Center Nawabshah. The center caters needs of 100 children with mental health children with intellectual disabilities through providing life therapies physiotherapy, Psychotherapy, Speech Therapy, Occupational Therapy and independent living.

NDF participation during consultation on Voter Education by Tabeer Pakistan

KARACHI: (22-02-2018) NDF participation during consultation on Voter Education by Tabeer Pakistan in Karachi. During the consultation NDF demanded to promote inclusive elections to facilitate persons with disabilities to exercise their right to vote.

Dr. Sadiq Siyal Chairman Nawabshah Thalassaemia Center visited NDF Rehab Center

   

 

Dr. Sadiq Siyal Chairman Nawabshah Thalassaemia Center visited NDF Rehab Center. He assured his technical & moral support. Dr. Sadique Siyal given suggestions to improve the management to ensure best services.

NDF delegate meets with US Mission on Political Affairs in Nawabshah

 

Civil Society Organizations of Shaheed Benazir Abad called on meeting with delegation from US Consulate Karachi at Zia Lanjar Farm House Nawabshah. US Consulate delegate consisted of Mr. John G. Robinson head of political and economic affairs, Mr. Adam Zerbinopoulos political unit chief and Ms. Sanam Noor meanwhile delagate from Nawabshah Mr. Abid Lashari President NDF Nawabshah, Ms. Saira Lashari President Pakistan Down Syndrome Association – PDSA, Mr. Zulfiqar Ali khaskheli President Shah Sachal Sami welfare association, Mr. Abdul Hameed Arain executive director CDF Sakrand and Mr. Talib Chandio Manager Hari welfare association Nawabshah. The delegation was briefed about the issues of Nawabshah and contribution by CSOs to play their role to deal. The US delegate encouraged role of CSOs to deal child rights, disability rights, women rights, peasants rights, education, health, nutrition, water and sanitation. They hoped for mutual interest and development for prosperity of society especially based in rural areas of Sindh.

  

PDSA Youth Skill Development Center Karachi organised Graduation Ceremony

 

KARACHI: (14-03-2018) Pakistan Down Syndrome Association (PDSA) and PDSA Skill Development Center Karachi organized graduation ceremony beautician course under BBSYDP PHASE-X Batch-I 2017-18 at Akhtar Colony Karachi. Mr. Amir Shah Program Officer BBSYDP, Ms. Samreen DMC BBSYDP, Mr. Kelash Kumar activist in peace building, Mr. Mansha Noor Director Karitas, Mr. Abid Lashari CEO PDSA awarded certificates of course completion among 30 trainees.